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Understanding MCAS Flares: The Bucket Model

Why can one trigger cause an MCAS flare one day but not another? For people experiencing symptoms associated with mast cell activation syndrome (MCAS), this can be a frustrating question. A person may tolerate a particular food, activity, temperature, or...

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Does Endometriosis Need a Name Change?

Does endometriosis need a name change? It is an interesting question — and one worth discussing. The word endometriosis describes a condition involving tissue resembling the endometrium growing outside the uterine cavity. However, the name itself does not necessarily communicate...

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Endometriosis, Art & Advocacy: Why Patient Stories Matter

Living with endometriosis is about much more than receiving a diagnosis. For many patients, the diagnosis is only the beginning of a much longer journey involving chronic pain, medical appointments, treatment decisions, relationships, work, movement, and navigating a healthcare system...

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Hypermobility & Common Comorbidities Part 4: Fatigue

Fatigue is a very common—and often overlooked—symptom for people living with hypermobility, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility spectrum disorders (HSD). According to a global survey conducted by the Norris Lab, 98.6% of people with hEDS and 94.5% of people...

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