Exploring Hypermobility and Chronic Conditions: Key Takeaways from the New York Hypermobility Collective Webinar

Hypermobility Spectrum Disorders (HSD) and Ehlers-Danlos Syndromes (EDS) are intricate conditions requiring multidisciplinary care and comprehensive understanding. The recent introductory webinar hosted by the New York Hypermobility Collective brought together experts to share insights and strategies for managing these complex conditions.

Understanding HSD and EDS

Dr. Melanie Carminati, PT, DPT, GTS, NCPT, introduced the collective’s mission to provide coordinated, evidence-based care for those with HSD and EDS. She emphasized addressing multiple bodily systems and the importance of collaborative treatment approaches involving rheumatology, physiatry, neurology, and other specialties.

Key Topics Discussed

1. Diagnosing and Managing HSD and EDS

• Dr. Jason Siefferman, MD, reviewed diagnostic criteria, including the Beighton Score and the exclusion of other connective tissue disorders. He highlighted the challenges of overlapping symptoms, emphasizing the importance of a detailed patient history and physical examination.
• Dr. Nino Mikaberidze, MD, explored the link between hypermobility and autoimmune diseases such as lupus and Sjogren’s syndrome. She discussed the role of imaging, biomarkers, and the impact of chronic inflammation on connective tissue integrity.

2. Pain Psychology and Its Role

• Dr. Deborah Barbieri, PsyD, LAc, MOSTM, delved into the psychological aspects of living with HSD and EDS. She explained how chronic pain rewires the brain, increasing sensitivity and reducing resilience. Strategies like Cognitive Behavioral Therapy (CBT), mindfulness, and relaxation techniques were presented as effective ways to manage pain and improve quality of life.

3. Physical Therapy Considerations

• Dr. Melanie Carminati emphasized the importance of individualized therapeutic exercise for patients with HSD and EDS:
  • Starting with supine exercises to accommodate autonomic dysfunction (e.g., POTS).
  • Using Pilates equipment for proprioceptive feedback.
  • Implementing manual therapies such as craniosacral therapy for nervous system regulation.

Research and Future Directions

The panel emphasized the need for:

• More Research: Especially on the genetic and epigenetic underpinnings of HSD and EDS and the effectiveness of regenerative medicine.
• Holistic Studies: Investigating how factors like the gut microbiome or environmental triggers may influence these conditions.
• Collaborative Efforts: Combining insights from diverse medical fields to create innovative care strategies.

Takeaways for Practitioners and Patients

• Multidisciplinary care is essential for addressing the complexities of HSD and EDS.
• Evidence-based, personalized treatment plans can significantly improve outcomes.
• Continued education and advocacy will be crucial for advancing care and awareness.

Stay Connected!

If you’re interested in learning more or joining future sessions, watch for announcements from the New York Hypermobility Collective. Together, we can foster a deeper understanding and better support for individuals navigating these conditions.

Don’t Miss the New York Hypermobility Collective Webinar on Tuesday, January 14!

The New York Hypermobility Collective is dedicated to providing exceptional care for individuals living with Hypermobility Spectrum Disorder (HSD) and Ehlers-Danlos Syndrome (EDS). This collaborative group of healthcare professionals specializes in addressing the unique challenges posed by these conditions, offering evidence-based, holistic, and coordinated treatment practices to support the many bodily systems affected.

Practitioner specialties within the collective include Physiatry, Rheumatology, Physical Therapy, Neurology, Orthopedics, Gastroenterology, Cardiology, and more. Together, they ensure a comprehensive approach to care that meets the diverse needs of this community.

Join us for an engaging webinar focusing on orthopedic and musculoskeletal considerations, featuring an esteemed panel of experts:

• Dr. Melanie Carminati, PT, DPT, GST, NCPT
• Dr. Jason Siefferman, MD
• Pepie Lapsatis, MS, OT, CHT

This event will take place over Zoom, with links provided to registrants prior to the session. Don’t miss this opportunity to gain valuable insights and practical knowledge from leaders in the field.

Save the Date: Tuesday, January 14, 2025

Register now and take a step toward better understanding and managing HSD/EDS.

Contact Information:

• Melanie Carminati, PT, DPT, GTS, NCPT
  (929) 295-6566 | Brooklyn Physical Therapy | hello@inspirapt.com
  275 4th Avenue, Brooklyn, NY
• Jason Siefferman, MD
  (646) 580-3538 | Manhattan Pain Medicine
  2 Fifth Avenue, Suite 7, New York, NY 10011
• Nino Mikaberidze, MD
  (646) 580-3538 | Manhattan Pain Medicine
  2 Fifth Avenue, Suite 7, New York, NY 10011
• Deborah Barbieri, PsyD, LAc, MOSTM
  (212) 620-7076 | Deborah Barbieri